In October 2012, our - then 5 yr old - son Vand'n was given the H1N1 vaccine. 6 weeks later, he developed Narcolepsy because of the vaccine. This is his journey and a collection of information we have found helpful. We are hoping to educate other parents about this side effect and hope to connect with other families dealing with the same thing in order to share resources and support. Click here to begin and learn where this all started.

Saturday, July 20, 2013

Shoe Shopping (Snoozing)


This is how Van feels about shoe shopping for school. We made it about 10 minutes and he went to the car with dad to sleep lol. On the plus side we did pick a pair of shoes before that.
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Blood for Mignot

Prepping to see Dr. Mignot....
Even though we still aren't scheduled till December we are getting all the prep work done so we can up and go last minute if we need.
Vand'n did so well, he didn't even cry (before he asked if it was ok if he did) he had to watch the whole thing. He wiggled a bit and had to have a second poke to finish. But all in all he did great.
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SOME GOOD NEWS!!!

Some Good News.... Vand'n is going to go see Dr. Mignot (Dr. Mignot is the worlds leading Narcolepsy research Dr. ) He is at Stanford University and he only see patients one day a month. We are so very lucky to have Van be accepted as one of his patients. We are tentatively scheduled for December but they are wanting to get him in before school starts. So hopefully we will be flying out in a month or two.
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