In October 2012, our - then 5 yr old - son Vand'n was given the H1N1 vaccine. 6 weeks later, he developed Narcolepsy because of the vaccine. This is his journey and a collection of information we have found helpful. We are hoping to educate other parents about this side effect and hope to connect with other families dealing with the same thing in order to share resources and support. Click here to begin and learn where this all started.

Tuesday, August 27, 2013

T-Shirts!!!

We have been working on some shirts for a while, and they are now finalized and being printed (they will be ready on the 12th of Sept).  We took a while to get them right because the characters are the basis for a children's book that Vand'n wants to write.  Before you ask, it will be Super Hero themed since Van's whole life revolves around anything with super powers. 

Narcolepsy is our New Normal, and he has embraced it as his super power.  We know it will make him stronger and work harder to get him where he is going in life.  


We choose to empower him to not be afraid or to let Narcolepsy have any hold on him.   We realize that he will end up being "The kid with Narcolepsy" because of all of this, but we feel strongly that is going to be the case even if we try to hide it and push it under the rug, so we have decided to help him along by not backing down, and not hiding, and letting him go out and boldly face the world.  

The shirts will be available for purchase if you are interested.  We can ship or arrange pickup if you would like.  We are asking for $15 donation to help with medication/doctors visits and to help get him to Stanford and possibly the Narcolepsy Conference in the next few years.  Please contact Deidre at (four three five)-463.2001  if you are interested.   

The boy and girl are available in youth sizes XS, S, M, L  and adult sizes S - 3XL in the colors shown below.
  


1 comment:

  1. LOVE THESE and I look forward to helping spread the word about your adorable t-shirts!! Thank you for helping to raise awareness about narcolepsy in such a creative great way.

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