After 6 weeks of being on medicine for his narcolepsy. We have these sparkly eyes a lot more lately. While his medicine is in effect at night he doesn't have night terrors or hallucinations. His cataplexy attacks are decreased to a couple a day (they were 10+ times a day). He still falls asleep 2+ times a day, but they are much shorter naps. He is experiencing multiple side effects from the medicine like; being angry and very violent, he seems a little depressed, and he is not quite himself. We are debating whether it is worth continuing the medicine much longer. The Dr. And the pharmacy nurses tell us that the higher doses and the longer he is on the medicine the less the side effects get and what doesn't go away they said we could treat with other meds like anti depressants and/or stimulants. We don't feel that treating the side effects with more drugs is the right answer we feel that it's just causing a vicious cycle and we don't know how long we can actually hold out before we look for a different treatment option.
On a positive note we are so grateful that it wasn't something life threatening, life altering yes, but it could have been so much worse, and at least we still have him here with us and we can learn to deal with his narcolepsy step by step. We know our Heavenly Father has great things in store for him and that he loves us all so very much and he will help us through. We also have the love and support of so many family and friends that will help us in anyway that we need.
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